What it is

I haven't had much time to write because I've been busy doing therapy with Connor every 90 minutes. I know I said I would post more info about the Sensory Processing Disorder, but it's taken me this long to get a grasp on what it is, what is does and how we are going to fix it.
Connor was diagnosed with Sensory Seeking type of Sensory Processing Disorder. This disorder is also called, Sensory Integration Disorder, Sensory Modulation Disorder or Sensory Integration Dysfunction. It seems to be if they would just pick a name, maybe there would be less confusion. The Sensory Seeking part of the disorder, appears much like ADHD in a child. You know the child that can't sit still or stop talking. The child that is constantly running into other children on the playground or hitting them self or basically doing anything that will provide the stimulation they are so desperately craving.
In addition, he was diagnosed with Dyspraxia, which manifests in a fine motor skill delay. I always thought that maybe he wasn't into coloring and drawing because he didn't get the art gene. In fact, it's more likely that it's difficult for him to do because holding a pencil is hard for him. So is holding a toothbrush or a fork or anything else that requires a strong grip for functionality. It's difficult for him to catch a ball as well, which on the playground sometimes leaves him left out of ball games.
Also, they found that he has Low Muscle Tone, which, attributes to the Fine Motor Delay as well.
And this is what we are doing about it. Right now, he has therapy every 90 minutes.
His therapy consists of brushing his body, (to wake up the nerve endings that are desensitized). Then compressions where we push into the joints, for example, taking the arm while holding the elbow and pushing it back into the elbow, (this is supposed to give him the deep tissue sensation that he craves). Then there is five minutes of spinning or swinging or rolling to stimulate the hairs in the ears, which brings a nervous system response or stimulation and then since he’s pumped up after, we have to bring him down with five minutes of heavy muscle work, (lifting heavy objects, push ups, sit ups or wheelbarrow walks). The lifting heavy objects does seem to calm him down, so I’ve been having him help with more heavy work around the house.
All of this is basically retraining his nervous system. The Sensory Seeking kids, get ramped up and don’t have the ability to come back down. Doing the hard muscle work, forces their nervous system back down, sort of training it. Some of the therapy seems a little strange, but if it produces results, we'll do anything. He’s getting to where he starts to fight me on the heavy muscle work because he’s getting tired of having to do it. At least during the day he gets a solid 15 minutes of Mommy time 5 times during the day, in addition to our other activities. Jorma does therapy number 6 in the evenings. The therapy is supposed to only be every 90 minutes for a few weeks then it goes to every 2 hours then it will move to every 3 and so on. This will continue for the next nine months, at which point they will evaluate him again and see if he needs more.
All of this is hard for me too, because it seems like as soon as I start doing something, I have to stop and do his therapy. Then there’s Tristan who is starting to get jealous and doesn’t understand why Connor gets to swing and spin with Mommy and he doesn’t. His response has been bad behavior to get extra attention. It’s tough. Sometimes after I am finished with Connor, I have to then do “therapy” for Tristan, doubling the therapy time. I feel lucky to have time to throw in a load of laundry.
Or blog. In fact, above is mostly an excerpt from another email I sent to a friend that was asking after Connor. But I wanted to post some information for those of you that are checking the blog to see how things are going.
Things are going well... considering Mommy feels like she's drowning some days.
They said that in six weeks we will see a drastic difference in Connor. I've heard from other Moms that in just two we should start to see improvement. I'm looking forward to it, not just for our own good, but for Connors. It must be awful to not be able to stop doing the things that you know will get you in trouble. I can't imagine how it must feel to go into shutdown each night due to over stimulation, (this is what led us to start seeking help in the first place). Connor would get so ramped up that he couldn't even eat his dinner. It's like he was having a mini nervous breakdown each evening and while it was hard on us, certainly it's even harder on him. I'm just glad that we were able to find some resolution and hopefully start taking the steps that he needs to get him back on an even keel again.