Its afternoon and we are at Grammie’s house when my Step Dad comes in wearing his police uniform after work. He sits down at the table and Connor appraises him, looks and me and then says seriously to him, “Papa Chuck, I don’t want to tell you this but Mommy has a library book and its WAAAYYY overdue.” My Step dad responds, “She does?” at which point Connor reiterates just to be sure that he’s being clear. “It’s WAY overdue.”
I asked my Step Dad to arrest me, because the thought of 3 meals a day that I didn’t have to cook, a facility with outside time and a gym seems like a spa retreat to me, but he wasn’t buying it.
I guess it’s time to talk to Connor about family loyalty. Or maybe just about library fines.
Monday, August 24, 2009
You Have the Right to Remain Silent
Monday, August 17, 2009
Dear Tristan - 2 Years, 11 Months
Last week we went to the beach. I went up to mow the grass for PaPaw, so we could have one last vacation before school started up. The first evening we were there, I got out the lawn mower and before I even had it started you were screaming. You weren't afraid of the mower at all, you were for some strange reason, suddenly afraid of bees. Specifically that bees were going to fly up your nose. You protected your nose by sticking both fingers into your nostrils as far as they would go and kept them there the entire time you were outside.
Mommy
Monday, August 03, 2009
Dear Connor - 4 Years, 10 Months
Monday, July 27, 2009
The Next Attention Deficit Disorder?
I'm so thrilled to see some attention given to SPD. It's such a relief when I meet someone that knows what it is so I don't have to launch into a detailed explaination of it all.
Monday, July 20, 2009
Dear Tristan - 2 Years, 10 Months
Every day I see or hear you do something that I want to remember to blog in your monthly entry. There is so much that you do that simply amazes me. Of course, by the time I sit down to write an entry you are sleeping upstairs in your chair and not even a cup of iced coffee can jog my memory to recall all of the cuteness that is you.
I could write about your obsession with booboos and bandaids. Or how you torment your brother by taking something that's his and running for your life to hide behind my legs claiming that you had it first. I could mention the little bit of sass you are experimenting with, finding that calling Mommy and Daddy names lands you in time out, even if Cuckoo-Popper isn't really an insult. Maybe your obsession with bugs. Your fear of mosquitos, swimming pools, said bugs and sunscreen.
I could write an entire entry on how quickly you've potty trained, even staying dry through the night and naps. We've been bribing you with the jellybeans left over from Easter and now we've moved on to m&ms. For the first time in almost five years I can not remember the last time I changed a poopy diaper. If I wrote an entire entry on potty training you, it would certainly include the neurotic flushing process you go through. Before going potty, you flush. You pee. You flush. You poop. You flush. You wipe. You flush. You finish pooping. You flush. You wipe. You flush. And if it's not all gone down. You flush again. I've tried explaining to you that you only flush once and even tried to make you get on the potty and finish your business without flushing in between jobs, but you refuse to even sit on the potty with that filth in the bottom. I guess it can go on for another week or so just until you really get comfortable with it all. I'm so proud of you.
I probably would like to forget how you torment the cat, chasing him and roaring like a lion because you think it's hysterical to watch him panic. I could also forget the screaming tantrum that you throw when we put you down for bed, as you take a page from your brothers book, yelling, "I want to tell you something!", over and over again. I've fallen for it a couple of times and the thing that you want to tell me is the free association stream of consciousness that's running through your mind. Anything that keeps me from closing your door for bed.
I could probably also stand to forget how if you don't like something that you've been given for dinner, you spit it out. Onto your plate. Immediately. Chewed or not. It's gross and we can't seem to break you of it.
Your Dad and I often talk about how sneaky you are. We, of course, can tell when you have a piece of food from the table that's being hidden in your hands or a toy that's been tucked into your pants, but you think you are getting away with something. If you are quiet, you are definately up to something... or sleeping in your chair.
I love you more than Sun and Light,
Mommy
Friday, July 17, 2009
Theme Week
I may have mentioned that I have divided the weeks of summer into theme weeks. The boys are really into it because they get to pick the weekly theme and they think it’s something special all week long. I print out coloring pages from the internet and have them color pages based on the theme, (this week is pirate week), and then we read books on the theme for bedtime, (which, really, we are reading bedtime books anyway, right?) and I come up with one other activity during the week. For Indian week, we read books, made Indian headdresses and colored pages printed from online. While we colored we listened to Native American flute music. When they wanted to watch a movie, I gave them a choice of Peter Pan or Pocahontas… Nifty right?
This week I’ve been slacking a little bit, but this weekend we are taking them to
Here’s some ideas that Pattie sent via email…
Dinosaur week, huh.....get the paper mache going, girl.....you can make some big dinosaur eggs and then hide them around the yard. There's one thought! When I think of anymore stuff, I'll yell! (Maybe some plaster of
And if you ever get around to NASCAR week, I've got TONS for that! We can show them how to roll tables and chairs, and set up for race! WOOHOO! Then you can show them how to pillage suite buffets for 800 lbs. of whole beef tenderloin, turkey breasts, hams and already wrapped hot dogs! (Don't forget.....you can also show them how to properly stuff said 800 lbs. of whole beef tenderloin, turkey breasts, hams and already wrapped hot dogs into duffle bags for transport!) And don't forget the hike to Parking Lot Z.....THAT oughta tire them both out!!! Hell, with some beer and friends, you can even show them how to fend off drunken Earnhardt fans!! You can then cap off the week with a trip to Darlene's driveway at 4am, with cold beer (alright....juice!), and tons of $1 dollar bills, of course, where they will also learn how to share the aforementioned pillaged foods, along with wonderful stories of their NASCAR week experiences!
Thursday, July 16, 2009
Break Report
Just yesterday I was going to go around the house and take pictures of all of the holes in the walls and put them into a photo montage that chronicled what it’s like living with drunken monkeys two small boys. I walked around room to room looking over the things that needed to be fixed and becoming more and more agitated. I thought that taking pictures of it all would be good therapy for me and at the least generate some sympathy from your loyal readers out there.
I grabbed the camera turned it on and was rewarded with Nikon’s famous, “lens error”. This means that the camera is now just a kids toy because it no longer is functional. Could be the kids broke it. Could be I did and have no memory of it whatsoever… but that’s not as likely. Now our first Nikon died the same, “lens error” death. I know that cameras are fragile, but they should be able to withstand at least some sort of abuse.
Thus, there will be no break report entry today because the kids have broken the camera… That being said, we will now begin taking donations for the digital SLR that will be replacing the cheap ass point and shoot cameras we’ve been buying. I’ll put up a donate now button just as soon as I’m finished patching up some of the holes in the walls.
Tuesday, July 07, 2009
Dear Connor - 4 Years, 9 Months
Finally you are starting to emerge from the chaos. When I say, you... I mean, YOU. It must be difficult to live in a world of visual and auditory distraction. To not be able to organize your own thoughts or to be in time out every thirty minutes because you can't control your impulses. Finally, you are starting to slow down.
At first I thought that maybe it was just a phase, but now I'm starting to feel like maybe it's going to stick around. Maybe the intensive therapy is starting to pay off already. It's been four days in a row and you've been in trouble less and coherent more. There is no hope like the hope of a Parent. This is something I know for sure.
When we started the therapy they said that we'd see changes in as little as six weeks. I had heard from other moms that major changes could come about in two weeks. In two weeks, you had gone the other direction, getting worse, before you were getting better, something that was quite hellish, when you add in the stress of continual therapy.
Because we've had no one to talk to, save the friends of friends that have Sensory kids and have been kind enough to spare me a few minutes on the phone to listen to me, I and another Mother with a Sensory kid have decided to head up the Sensory Support Group in Charlotte. We are trying to get it started through the SPD (Sensory Processing Disorder) Foundation and have a long road ahead of us. We are dabbling in the Foundation to see how it goes, but it's entirely possible that we'll end up starting something of our own. I guess one child's misfortune can be another child's salvation. I hope we can help some people.
Aside from the daily excitement of therapy we've not been doing much this summer. You've honed your obsession with building contraptions, using anything available and various rolls of tape or blankets. I sometimes wonder if you were Macguyver in a past life. By the time you read this entry, Macguyver will be one of those pop culture references that you don't know. It will be a word that's as unfamiliar as album, cassette or cash. Google it babe. I'll bet that's something that's still around.
I've divided the remaining weeks of the Summer into theme weeks. This sounds much more June Cleaver, (another name for you to Google) than it is. Basically, I get so paralysed by my analysis of what to do each day, we sometimes end up doing nothing because the things to pick from are just too overwhelming. So, this week. Indian Week. Next week is Pirate week and so on. It's easy for me to think of an Indian related (or Native Americans as the nice lady at the library with a dot on her forehead reminded me) craft or project to do. You are so crazy into this. I should have thought of it sooner. Really, it's quite genius. Each week will end on a Saturday and we'll have some sort of Grand Finale. I'm not sure what the Indian week finale is going to be... but you'd best be glad that you're not 16 or we'd be out back building a sweat lodge. I wonder if the neighborhood association as a rule against those?
I love you more than ever.
Mommy
Saturday, June 27, 2009
Monday, June 22, 2009
Silly's All We Got
Wednesday, June 17, 2009
6 Simple Steps
Once plugged in, put the earbuds into your ears.
Then, choose your music.
Sit back. Chill.
Enjoy.
Sunday, June 14, 2009
Because I Said So
I respond, "Buddy, you do that 100 times and I'll let you eat as much ice cream as you want, right out of the carton."
And when you are a parent, you have to do what you say you are going to... even when the impossible happens.
Friday, June 12, 2009
Dear Tristan - 2 Years, 9 Months
You poor little thing. In addition to having to watch Mommy spin and play with Connor five times a day to get his therapy done, (the 6th time is with Daddy), you have developed an obsession with bugs. Today alone, I've taken the broom from you four times because you saw a piece of fuzz on the floor and thought it might be a spider. Wednesday I flushed a spider down the toliet, "sending it to the beach" of course, and you talked about it for the rest of the day. You are fascinated and frightened all at once.
You are getting a little bit jealous of your brother getting so much attention right now and I feel so bad for you. I try to let you help, but it turns into a brawl with the two of you fighting over whatever object we are working with. I try to give you some extra love in the evenings after your brother goes to bed and you don't seem to mind this at all.
You are getting so big! I'm so glad that you are still small enough to fit into my lap, so in the evenings when I read, "Meet Diego" from your Dora the Explorer Storybook, for the 200th time, I can sit with your head next to mine and smell your sweet baby smell.
The blankie is your eternal friend. You love blankie. You talk to blankie. I know for sure if there was a fire in the house and there was one thing you could grab, it would be blankie. Blankie is also the one thing that you do not have to share. If your brother tries to take it from you and I appear in the room, he instantly drops it, knowing that punishment for taking Blankie is swift and sure. We feel like if there is any one thing in this house that is completely yours... it's Blankie... well... and maybe the chair in your room.
Oh, but you love to sleep in the chair in your room. Generally, you nap in your chair during the day and sleep in your bed at night. Many nights, even if we put you in the bed, you get up and move to the chair when you are done with the "I don't want to go to bed" protest. Some mornings though, when you wake up at 6am and your "I'm ready to get up", cries are ignored, you snuggle into your chair and allow us all another hour of blissful sleep.
You are starting to fight bedtime, standing at your door crying and sometimes falling asleep in front of it. When this happens you wake up, not sure where you are screaming in terror. You'd think there was a spider in your room.
I know I should be potty training you, but I keep putting it off. You like to pee in the potty, but still cry for a diaper if I insist that you poop on the pot. I'm not sure if I am putting it off because we have so much going on right now, or because once you are trained, our baby is growing up. It's so hard to let go.
I love you,
Mommy
What it is
Connor was diagnosed with Sensory Seeking type of Sensory Processing Disorder. This disorder is also called, Sensory Integration Disorder, Sensory Modulation Disorder or Sensory Integration Dysfunction. It seems to be if they would just pick a name, maybe there would be less confusion. The Sensory Seeking part of the disorder, appears much like ADHD in a child. You know the child that can't sit still or stop talking. The child that is constantly running into other children on the playground or hitting them self or basically doing anything that will provide the stimulation they are so desperately craving.
In addition, he was diagnosed with Dyspraxia, which manifests in a fine motor skill delay. I always thought that maybe he wasn't into coloring and drawing because he didn't get the art gene. In fact, it's more likely that it's difficult for him to do because holding a pencil is hard for him. So is holding a toothbrush or a fork or anything else that requires a strong grip for functionality. It's difficult for him to catch a ball as well, which on the playground sometimes leaves him left out of ball games.
Also, they found that he has Low Muscle Tone, which, attributes to the Fine Motor Delay as well.
And this is what we are doing about it. Right now, he has therapy every 90 minutes.
His therapy consists of brushing his body, (to wake up the nerve endings that are desensitized). Then compressions where we push into the joints, for example, taking the arm while holding the elbow and pushing it back into the elbow, (this is supposed to give him the deep tissue sensation that he craves). Then there is five minutes of spinning or swinging or rolling to stimulate the hairs in the ears, which brings a nervous system response or stimulation and then since he’s pumped up after, we have to bring him down with five minutes of heavy muscle work, (lifting heavy objects, push ups, sit ups or wheelbarrow walks). The lifting heavy objects does seem to calm him down, so I’ve been having him help with more heavy work around the house.
All of this is basically retraining his nervous system. The Sensory Seeking kids, get ramped up and don’t have the ability to come back down. Doing the hard muscle work, forces their nervous system back down, sort of training it. Some of the therapy seems a little strange, but if it produces results, we'll do anything. He’s getting to where he starts to fight me on the heavy muscle work because he’s getting tired of having to do it. At least during the day he gets a solid 15 minutes of Mommy time 5 times during the day, in addition to our other activities. Jorma does therapy number 6 in the evenings. The therapy is supposed to only be every 90 minutes for a few weeks then it goes to every 2 hours then it will move to every 3 and so on. This will continue for the next nine months, at which point they will evaluate him again and see if he needs more.
All of this is hard for me too, because it seems like as soon as I start doing something, I have to stop and do his therapy. Then there’s Tristan who is starting to get jealous and doesn’t understand why Connor gets to swing and spin with Mommy and he doesn’t. His response has been bad behavior to get extra attention. It’s tough. Sometimes after I am finished with Connor, I have to then do “therapy” for Tristan, doubling the therapy time. I feel lucky to have time to throw in a load of laundry.
Or blog. In fact, above is mostly an excerpt from another email I sent to a friend that was asking after Connor. But I wanted to post some information for those of you that are checking the blog to see how things are going.
Things are going well... considering Mommy feels like she's drowning some days.
They said that in six weeks we will see a drastic difference in Connor. I've heard from other Moms that in just two we should start to see improvement. I'm looking forward to it, not just for our own good, but for Connors. It must be awful to not be able to stop doing the things that you know will get you in trouble. I can't imagine how it must feel to go into shutdown each night due to over stimulation, (this is what led us to start seeking help in the first place). Connor would get so ramped up that he couldn't even eat his dinner. It's like he was having a mini nervous breakdown each evening and while it was hard on us, certainly it's even harder on him. I'm just glad that we were able to find some resolution and hopefully start taking the steps that he needs to get him back on an even keel again.
Thursday, May 21, 2009
Dear Connor - 4 years, 7 months
Once you told your Grammie Kathi that you wanted to be good, and you didn't know why you couldn't be. We thought for a long time you were just "all boy" and that maybe you were just really, really tired at the end of the day when you couldn't slow down. After a while, once you passed through your terrible twos and the "even worse three's" you still were non stop. It started to appear that there might be a problem.
In fact, I thought there was a problem well before that. By well before, I mean when you were one year old and displaying little quirks that we were sure weren't normal. You wouldn't make eye contact, you didn't want to be held, you wouldn't let us brush your teeth, you didn't really play with toys. I researched Autism. I was afraid. Your Dad was worried. I talked to the Dr. she didn't take it seriously, you know, me being a new Mom and all.
At two years old I went back to the Dr. explaining that you were unusually active. The diagnosis was that you were "a boy". That we needed to be more consistant. In part this was because you were only having problems at home and I reported no problems at school... because none were reported to me.
A year later I was back. Explaining that something was off. That it wasn't normal for a little boy to be as active and frenetic as you became in the evenings. That it wasn't sleep deprevation, and it wasn't just me not being able to handle my own child. Again she was going to lecture me on consistancy until I said the words, Sensory Processing Disorder. Then she said that she could recommend someone and did. They had a year long waiting list for diagnosis.
While I was trying to find more information to help you, I started getting reports of your bad behavior in school. I was confused by this since I had not had any reports of bad behavior any of the previous years. I called to speak to the Director of your preschool, because I thought that if all of a sudden you were misbehaving this badly, that your new teacher, (who, later we came to love) had expectations that were too high. Imagine my surprise when the director informed me, (without any compassion), that the year before your teacher had been in her office several times about your behavior. No one had ever mentioned this to me. Imagine my fury. And suddenly, it all started coming together. Holy shit. Maybe it wasn't just me.
We had you evaluated by the school system, which turned out nothing useful since you had no problems in congnitive areas. In fact you showed to be quite bright in several areas. They did think that you should be evaluated for a Sensory Processing Disorder.
Through a friend of a friend that had a Sensory kid, we found a private office that would evaluate you without a year long wait. During your first screening I was told that you obviously had sensory issues. I cried... from relief.
Yesterday, your Dad and I went for your full evaluation. They reported that you have a Sensory Processing Disorder (Sensory Seeking), Dyspraxia (Fine Motor Skill Delay) and difficulty sequencing actions. I'll get more into the details of it all later, but in short, after about 9 months of Occupational Therapy you'll be just fine. I can not tell you how relieved we are, not for our own sanity, although that's some of it, but because soon it will be easier to be "good".
Because it took a whole lot of me ignoring bad advice from other people and trusting my instincts. Because when I told you in another entry that we would always fight for you, I wasn't kidding.
I'm so glad your mine,
Mommy
Dear Tristan 2 Years, 8 Months
Today was the last day of your first year of preschool. You loved going and playing with your friends, even if it took you the five months to stop crying when I dropped you off. Oh no, I don't think it was that you didn't like school... I think you just wanted me to stay and hang out with you while you were there.
A few weeks ago, we were walking into the school and a little girl that I've never met said, "THERE'S TRISTAN!" to her Mommy. Another little girl, quickly turned around and said, "Hiiii Triistaann!" with a look so coy I felt a pang of pity for her parents when she hits high school. You stopped and beamed at both girls and then went on about your business. Your business being project: chase brother to the classroom. The ladies love you. You loved your teacher and so did we. It makes me sad to know that we are finished for the Summer. Next year you are going to a different school, with a new set of teachers and I'm nervous already.
You and your brother are still fighting as always, but you still can not bear to be apart. When I put him into his room for time out, you inevitably end up closed up in yours because you keep trying to let him out. I try to explain that he's in there for beating on you and that he has to finish his time, but you don't understand crime and punishment yet.
You've gotten tall quickly and introduce yourself to perfect stangers as either Batman or Ironman. You are starting to speak so clearly that even people that don't hang out with 2 year olds all day can understand you. I'm very proud of your verbal skills.
We are going to have a fantastic Summer. With all of our beach trips and the Summer fun we've planned I'm almost sad that you probably won't have any memories of it. Not to worry, love. I'll take lots of pictures.
I love you,
Mommy
Saturday, May 16, 2009
Easter Sunday
Wednesday, May 13, 2009
Catching Up
Wednesday, April 29, 2009
Can You Hear Me Now?
Several of you have heard about the ear problem I was having and asked me if I tried this or that. I want you all to know that I tried everything. And to display proof of my desperation, here’s the list of what I tried.
Externally; the ENT, Chiropractor, Full Body Massage with lymphatic drainage, steam, hot packs, cold packs, ice packs and heating pad (dry heat). I even turned on the Sonic Toothbrush and held it to my ear to try to vibrate the stuff out of it, (this sounds strange, but it sort of helped).
In the ear I tried; garlic oil, steroid drops, sweet oil, vinegar, wax removal drops, hot water.
In the nose I tried; neti pot with a squirt of nasal decongestant (this probably helped the most out of anything but OMG it hurt like a Mother$%&#$@!), neti pot with salt water, saline nose spray.
Internally I tried; Sudafed, antibiotics, steroids, Omega 3, 4000 mg of Vit C daily, Ibuprofen, Red Algae, Echinacea/Goldenseal, Hot Tea
Just to feel better I tried; Smoking, Milkshakes, Hot baths and Chocolate
Ultimately I think the thing that worked the best was the Neti Pot… and time.
Wednesday, April 22, 2009
Breaking the Surface
Ok, so my ear is finally on the mend and I’m starting to feel like I’m functional again. I feel like I've been underwater and I'm breaking the surface. I know it sounds crazy that something as simple as fluid in the ear can be so debilitating, but it was. It was so distracting to not be able to hear that I didn’t want to go anywhere or do anything. It’s difficult to carry on a conversation with someone when you hear your own voice so clearly in your head. It’s sort of like when you hear yourself on the answering machine and say, “Do I REALLY sound like that?” It’s also difficult to focus on what someone else is saying when you hear everything in stereo. So if you have talked to me in the past month and it seemed like I wasn’t really paying attention. I wasn’t. Just so we are clear.
In the meantime, I’ve got some catching up to do.
During the past few weeks I did get one major thing accomplished. I completed my CNA (Certified Nursing Assistant) Class. Now I just have to study like crazy and take the state test in a couple of weeks. In case you are wondering what in the hell I’m doing taking a CNA class, let me enlighten you. I’ve decided to go back to school for nursing. Some of you will be astounded by this, being that I have such a cool career as a graphic designer going for me. However, it’s not so cool to watch your field dry up before your very eyes as soon as someone even thinks the word recession. Plus, now that the online templates and design programs have become “idiot proof” the mainstream of start up companies that utilized graphic designers to get their corporate presence situated are now doing it themselves. Not to mention websites that offer design bids, where the average joe can get a logo for $50.00. Why don’t I hop on one of these websites and get some work there you might ask? Because in the end you are still competing with people in other countries, (you know, the countries that hold our talk centers), that will do the design for a quarter of the price I would charge. I’m just not willing to do the work if I’m only making $5.00 an hour. But I digress.
When Jorma was unemployed two years ago, I realized one thing. If had a degree in nursing I could have walked out the door and gotten a full time job with benefits. Hell, I probably could have gotten a full time job AND a part time job, just to glue us together until he found something else. Instead I searched for six months before finally landing a fantastic design gig with a company that I still do side work for. But now that he’s working and I’m not, I know one thing for sure. If he gets laid off… we are screwed. So, I’m going to step up to the plate.
Now, please don’t make the mistake of thinking that when I say I’m stepping up to the plate it means that currently I’m lying on the sofa eating bon bons all day while the children play quietly in the corner. I stay pretty busy. Managing the house, the kids, the laundry, (OMG the laundry), going to the gym and working part time is more than a full time job in itself. So much so that when I was working a temp part time design gig last fall I savored each Friday because I could go and pee without a child in the bathroom with me. And lunch with the girls. In a restaurant. A restaurant that doesn’t have a giant mouse for a mascot! Oh the glory.So, I'm going back to school. I'm not quite sure what I'm going to do with the kids when I get into nursing school, since it's a full time gig. But I'll cross that bridge when I come to it.
Until then, I've got some studying to do... and some laundry. Always the laundry.