Friday, November 20, 2009
SPD Charlotte November Meeting
I love my group.
Monday, November 16, 2009
Wee Yeasties!
Connor eats plenty of veggies and even takes fish oil without complaint. Tristan on the other hand exists primarily on carbs, specifically crackers, chips and cereals. Tristan actually randomly breaks out in yeast infections. Behind the ears, on his mouth. His last one appeared right after Halloween. There's the sugar link. What I'm saying is this. It is entirely possible that both of my children are so yeasty that it's affecting their health. In Connor's case it could be affecting his focus, attention and memory.
Ok, so you are on board with this, now what do you do?
You find a peditrician to prescribe an anti fungal like Diflucan or something. If you listen closely here, you can hear peditricians hysterically laughing at this. Because you'll probably never find one that will prescribe this, unless you can land a DAN doctor somewhere in the area. What then? You starve the yeast while supplementing with probiotics. Starve the yeast... that sounds easy, right? Sure. If you don't mind going gluten free, malt and vinegar free and sugar free. For me that would be hard. For Connor, it would be so incredibily difficult. Or would it? Is is worth not eating a cupcake for three months to be able to focus again? To not be shuned by other children and to be able to make friends? If you ask him now, he'd say no. Ask him twenty years from now and he'd probably have a different answer.
Are we going to try it? I think so. Maybe first of the year. In the meantime I'm going to start weaning him off of the gluten. Study up on what I need to do, get the hang of administering probiotics and maybe get a small bank loan since it's crazy expensive to eat gluten free. Is this crazy? Sound off for me here people. All lurkers are welcome to comment.
Sunday, November 15, 2009
Connor's Mommy and the Very Bad Day
I was absolutely humiliated. I pulled him out of the party took him into the lobby and had him sit for five minutes to calm down. I talked to him about it. I threatened. He promised. Then I brought him back into the party, where he continued to ride the edge of the, Mommy will take me home if I don’t behave threshold.
To add insult to injury, one of the other Mom’s came over and told me that her neighbor’s kid has ADHD and that they make him stand with his arms out for 5 minutes to punish him and that it really works. Then she continued to launch into a stream of unsolicited advice about how I should be disciplining Connor. She didn’t SAY that’s what I should be doing… but coming over and just randomly explaining to me the types of discipline that works with her children. I was so completely shocked by this that I couldn’t even respond. All I can think about is how I can’t even explain to her how much we DO for Connor to keep him disciplined. That we have a detailed chart system, he earns chips and uses them to buy things that he wants. We have a bedtime clock so that when we take minutes off of bedtime he can see what his bedtime clock says, by matching up the hands next to the mantel clock it sits next too. That I’m constantly experimenting with different supplements and methods to try to help him. That we chart each thing that goes into his mouth, eliminate food dyes and do crazy therapy with him several times a day. That I probably read more in a week on how to help my kid than she reads in three months. I want to explain all of this to her, but I can’t, because I’m afraid that if I open my mouth, something else might come out. Something that’s not appropriate at a child’s birthday party. So instead I just get up and walk away. That’s what Gandhi would do, right?
I cried the entire way home and then three other times on the phone with random people. It was an awful day. It’s hard enough for Connor who honestly can NOT control himself. It’s not a matter of him not knowing what to do. He has no impulse control. Should I have taken him home? I’m so unbelievable sick of blame. Why does it have to be the parents fault all the time? Why can’t people get that my kid can’t control himself BECAUSE SOMETHING IS WRONG WITH HIS BRAIN?! Maybe I’ve been going about this all wrong. Maybe instead of doing all of this crazy shit, I should just take away his teddy bear. That ought to do it.
Does no one understand compassion anymore?
Wednesday, November 11, 2009
We Feel Fine
There was a nifty little applet in this entry, but it seems to have vanished so here's a link to the Amazon page if you want to view the cover.
Tuesday, November 10, 2009
Experiment # 117: Fish Oil
I posted info on the Oxford Study that I found on ADHD, Dyspraxia and Dyslexia and Fish Oil, but since I’ve found a study from Australia and found references to Omega-3s for Dyspraxia in a book I’m reading called, Special Needs Kids Eat Right. It didn’t make sense to me that so many children would have that much of an Omega-3 deficiency. I mean what about people from cultures that just don’t eat fish. Or people that just don’t like fish. Like me. I would think that the numbers of these disorders would be higher and there would be some apparent link… it must be something else. But then I read that they think that these kids actually have a problem metabolizing the Fatty Acids found in fish oils. Thus the deficiency. OK that, made total sense to me. That I could get behind. It clicked. It only helps 50% of the kids they studied, (in all of the studies I found), but if your kid is in that 50 percentile… your golden right? Results sometimes appear as soon as 2 weeks, but it can take 3 months for the full effects to be seen. I’ll give it four months. Either it works, or we end up with the smartest kids on the planet from all of the Omegas. At least then if Connor is bouncing off the walls, I can turn to the other Moms at the birthday party and say, “He’s a genius, you know.” Oh wait, I say that already.
I’ve found a Pharmaceutical Grade Fish Oil, that’s for grownups. It’s high in EPA and DHA. We are supplementing with Evening Primrose Oil which is a powerful source of GLA and are adding in some ProBiotic action to keep the intestinal flora healthy. The good thing about the liquid supplement is that it’s easy to split the dose into a child portion. It boasts to be the best tasting fish oil on the market. Connor will eat anything, but today he told me that he didn’t like it because it didn’t taste good. Looks like it might be time to add some Chocolate Syrup to the cocktail.
So far we are on day 3. Only 117 more days to go. Don’t worry, I’ll keep you posted. And by the time it’s over you’ll know more about the effects of fish oil than you’ve ever cared to.
Monday, November 09, 2009
Stick Figure Families
These images are everywhere. They seem to be a replacement for the Calvin and Hobbs peeing stickers that were so popular a few years ago. Remember those? I think the stick figure familes are cute, (although I wouldn't put one on my car) and I'm not quite sure why so many people have the hate on for them. I mean really, if you are wanting to hate on something, I think there's probably some Genocide somewhere in the world that you could take action to prevent. People waste their energy on stupid stuff... (like blog entries?). I know, there I go getting off track again. Maybe I need to be takin' some fish oil.
I created these for my Word Doc header for family letters. I've been typing instead of writing letters to family that doesn't have access to email (Grandparents and such) and these give them a little bit more of a personal touch. I'm so used to typing now that if I sit down to write a long letter my hand starts cramping. Oh stop. Don't even act like that doesn't happen to you.
So here's my stick family. Do you like how my stick person is about 40 lbs lighter than me? She's my fantasy self. The one that never goes to the gym and eats 5 cupcakes for breakfast every morning. Maybe she irons too...
Thursday, November 05, 2009
Apple Picking
Wednesday, November 04, 2009
Dyslexia, Dyspraxia and ADHD - Can Nutrition Help?
I think that the rise of disorders like ADHD, Dyslexia and Dyspraxia is more than about a population increase. Especially ADHD, which has risen so high that we must be looking at an environmental factor or a dominate gene. So, if you know someone that has or has children with any of these conditions it might be worth sending them this study. I'll be sure to post any results from any experimentation we undergo.
Saturday, October 31, 2009
Oh Craigslist Chair... The Final Saga
Happy Halloween
Tristan didn’t want to wear his Spiderman mask, but carried it around balled tightly in his fist all night. He wouldn’t let go of it because he knew it went with his costume and he didn’t want to lose it. Luckily, we missed the rain. Jorma took the boys out prepared for a downpour but before they left the neighbors house the rain stopped. We always say that Tristan runs between the rain drops.
Friday, October 30, 2009
Who Wants a Cupcake?
Thursday, October 29, 2009
Dear Connor - 5 Years
It’s hard to believe that you are already five years old. To me, five marks the end of the little kid years and the herald of the big boy age. I’m lucky you still fit in my lap. Your attention span is (very) slowly but surely coming online. You are now asking to play games like Candyland and are able to sit down for short periods of time and do puzzles.
While we are taking this break from your therapy we are going to embark on a major mission of discovery, elimination testing… your Dad and I are constantly trying to find methods that will help you focus and make you more comfortable in your own skin. Recently there have been several studies done on allergies and their trigger on behavior. We have decided that we are going to start eliminating items from your diet to see if there is a difference in your ability to sit still and focus. First we are going to try apples. Apples are easy enough to eliminate from your diet and after the experience that we had at the apple orchard, where you suddenly felt sick and couldn’t get away from there fast enough, we thought it was worth a try. This method is known as the Feingold diet. We’ll try anything short of shock therapy to help you, so why the hell not. I mean, who can’t live without apples for three weeks? From there we’ll eliminate all artificial flavors and preservatives which may be a slight annoyance to friends, family and the preschool but I just have to know. I mean, what if it’s some random preservative that’s causing you to lose control of yourself? If I waited until you were 12 to try it, I’d be so upset with myself for waiting so long. As your Great Grandfather said to me once, “It can’t hurt and it might help”. Nobody really needs to be eating that crap anyway, right?
This Halloween you are going to be Danny Phantom. Oh, how I cannot wait for the day that I can just go to a store and buy your costume. Every time you tell someone that you are going to be Danny Phantom for Halloween, they say, “Who?” which is why you ended up with a homemade costume again this year. Today you had your party at the preschool and we put you in your costume and even sprayed your hair with silver hair spray. You totally rocked the silver hair, Mister. You weren’t sure about it at first, but I have the feeling in the next twenty minutes an argument is going to occur regarding the shower.
Happy Birthday Danny Phantom. May you always use your ghost powers for good.
I love you,
Mama
Tuesday, October 27, 2009
A Project to Remember
Oh Craigslist chair. I have stripped you bare. In only 4 hours. Now I just have to figure out how to put you back together... with new fabric, padding, batting and trim. Wait. How much is all of THAT crap going to cost?!
To be continued....
Tuesday, October 13, 2009
5 Minute Chocolate Mug Cake
4 tablespoons flour
4 tablespoons sugar
2 tablespoons cocoa
1 egg
3 tablespoons milk
3 tablespoons oil
3 tablespoons chocolate chips (optional)
A small splash of vanilla extract
1 large coffee mug (MicroSafe)
Add dry ingredients to mug, and mix well. Add the egg and mix thoroughly. Pour in the milk and oil and mix well.. Add the chocolate chips (if using) and vanilla extract, and mix again. Put your mug in the microwave and cook for 3 minutes at 1000 watts.
The cake will rise over the top of the mug, but don't be alarmed! Allow to cool a little, and tip out onto a plate if desired.
See the cake. See the cake rising over the top of the mug. Am I alarmed? Hell no. You should have seen what the microwave looked like BEFORE I put the mug into it. Here's to hoping a little bit more funk inspires me to clean it.
Here is the cake after cooling. Looks promising. My children start to smell chocolate and are suddenly standing so close to me I wonder if they are taking bets on who can get back into my uterus first.
Drum roll please....
It did have a cake like consistency although it seemed to not cook evenly. It was very dense.
I would give this recipe 3 stars. And one of those stars is because it's a five minute jobbie. But I'll take one for the team here and keep working with it, until I can find something that rocks the house.
Good, bad or inbetween I'll tell you one thing though. My kids ate the crap outta that cake.
Monday, October 12, 2009
Dear Tristan - 3 Years, 1 Month
You've grown an inch since June! That's a lot for a little guy! You can throw the crap out of a ball too. And catch! You actually like playing ball. Who knew? Now if you could just stop throwing them in the house? Thanks. I really liked that picture frame.
I love you,
Mommy
Wednesday, October 07, 2009
Dear Connor - 4 Years, 11 Months
Mostly your Dad puts you to bed each night and I put your brother down. Sometimes though, your Dad goes to the gym or something else is going on and I put you both down or your Dad and I will switch the duties and I’ll put you to bed. On the nights that I put you down for bed you always ask for a lullaby that you’ve never heard before. So, I pull something out of the recesses of my brain to sing to you. Sometimes I get part of the way through the song and realize that the words need to change very quickly because when I’m singing Jeremy by Pearl Jam, I don’t want to sing the, “bit the recess ladys breast” lyric and quickly change it to, “gave the recess lady a kiss”. You’ve heard some Led Zepplin, Fleetwood Mac, Jefferson Airplane and Black Eyed Peas. You like the Tori Amos, Happy Phantom song and remember the ones that I’ve sang to you before. You like the Janis Joplin, Mercedes Benz song but you say it’s too loud.
You've been making up songs with words that rhyme and you're pretty damn good at it. You love making potions (mud pies), Danny Phantom and your new babysitter. You are driving me completely insane with your, "What if" game that begins with you asking me strange what if questions until I feel like I need to go and lock myself in a broom closet to get away from it all. This morning it was "What if Tristan ate a snake?" At first I tried to prove the futility of your question by answering, "How would Tristan catch a snake?", you weren't having any of my crap though, you simply respond with, "What if he did catch one?" It's Who's on first for the first thirty minutes of each day. I've considered moving the coffee pot to the upstairs bedroom.
I said, "What in the hell is THAT?" I thought I was talking to myself, but then realized that I wasn't when you responded, " I don't know, Mama, What the hell IS that?"
This is how the rest of the conversation went.
"What word? Hell? Why can't I say Hell?"
"And four year olds can't say Hell?"
"No. Stop it."
"Connor..." (in a warning tone)
I won't bore my readers with the rest of the conversation, because it basically ended up with me getting testy and him understanding that the envelope had been pushed far enough.
I love you,
Mama
Sunday, September 27, 2009
SPD Support Charlotte
The Monday before my SPD Support group meeting, I woke up at 7am and my hands were shaking. I didn’t have a nightmare, my blood sugar wasn’t low, I was nervous… four days before. By the time Thursday came, I had it pushed out of my mind until the drive up to the meeting location, where the only thing I could do to distract myself was to grab the nearest unscratched CD and blast it as loud as it would go. I would like to interject here that no matter how good you look, what you are listening to, or where you are driving, it is impossible to be cool while driving a minivan. Once I arrived at our chosen venue, (local restaurant with backroom), people slowly started coming in. I was drinking a beer, praying that the liquid courage would work its magic.
Apparently it did.
I was really nervous when I first started talking to the group. Everything I had rehearsed in my head a million times was gone as the panic took my words away. We were sitting in bar stools at the end of the room so that everyone could see us and because I was holding a beverage, it made it possible to hold on tightly enough that you couldn’t see my hands shaking.
I told my story, which was much shorter and less poignant that I had hoped it would be, thanks to my nervousness but once I was finished talking, I relaxed and was able to speak to the group without feeling like my heart was going to leap through my chest.
I believe that this group is needed. I believe it so much, that I don’t give a shit if I get up there and uncontrollably shake each time I talk to them. What is one person’s embarrassment to the salvation of 20? Or 19, which is how many people we had at the first meeting. It was amazing.
When I was telling my story and talking about Connor rubbing poop all over everything for several weeks, there were people that were emphatically nodding. When I talked about how frustrating it is to have a child that’s out of control or to have people tell you that all you need to do is provide more discipline when you know that you are being as consistent and possible and might in fact, be more strict than a lot of parents that you know, people were nodding… not just smiling and nodding either, nodding because they understood. Because they too had been though the confusion, the judgment that comes with having an SPD kid. I had known them all for about 15 minutes and they understood me. And I understood them. And we were starving to talk to each other.
The group members passed around information about diets, doctors and books. They talked about their frustrations with the pediatricians not understanding and their families that didn’t think there was anything wrong with their child. They talked about how long it took to figure out there was a problem and no one has every heard of SPD. They talked. And talked. And talked.
My co-host, Susie and I were still sitting at the front of the room, more as spectators of the discussion than members of it, because we were running the show. Susie mentioned that next time she wanted to be sitting at the table and I couldn’t have agreed with her more.
So far I’ve had over 50 people contact me about the group. I don’t know that we’ll have that many people show up at each meeting, but I do think the group may get even larger than that as the news spreads that it’s out there. I’m just glad that we are able to offer support to so many parents who, like me are starving for connection. We are going to need to find a bigger meeting room.
Monday, September 21, 2009
Dear Tristan - 3 Years Old!
For us, three is worst than the terrible twos. Or at least it was with your brother. I have no doubt that three is going to be worse for us with you than two was. This is because the day you turned three you started whining and you have not stopped yet. So much that even last night in your sleep you were whining.
I love you like crazy,
Mommy
Thursday, September 10, 2009
Why You Shouldn't Drink Before a Presidential Speech
Of course everyone on the Internet has probably blogged this link already... so here's mine:
http://www.joewilsonisyourpreexistingcondition.com/
As much as I'd like to pretend that I found this link somewhere on CNN, Jorma showed it to me when he got home... I was busy ironing. No really.
I think what's even more interesting than this link, is the link on the bottom right. It looks like the attempt to run Joe Wilson out of office might be quite lucrative for Rob Miller the Democratic Election hopeful for 2010. So far, $185,307.32 has been raised to "teach Joe Wilson a lesson". I think this is freakin hilarious. I bet never another senator will start yelling like they are at a high school pep rally. Or at least any Senator that wants to keep their job.
Saturday, September 05, 2009
If You Build it They Will Come
When Connor was first diagnosed with SPD, I searched for a local support group. Finding that some pediatricians and the general population both don’t have an understanding of this disorder is frustrating. I searched the SPD foundation website, but did not find any support groups for
For the first meeting we are getting together lists of local OTs, name tags, ice breakers, logo, agenda and a reservation in the backroom of a local restaurant. We are rolling right along. I think it’s going to be fantastic for the community and not as much work as you might think, once the ball gets rolling… there’s only one flaw. Since my co-host and I are the founders of this group in
For those of you that do not know me that well, let me tell you my dirty little secret… public speaking terrifies me. Now I know you are thinking to yourself that you get nervous too when standing up in front of a group of people. But you don’t get nervous like this. Oh no you don’t. My entire body shakes. My voice shakes. I break out into hives. I am that person. I know you think that I’ll get used to it, (once I took three back to back semester long public speaking classes), or that if I’m talking about something I’m passionate about I’ll be ok, (you should have seen the speech I gave on how to take better pictures… you could see my heart beating through my shirt). Now eventually I do get used to it. It takes a lot of time but eventually I’ll be ok, but I still worry about that first impression. What’s the worst is that when people see you are nervous, they give you their full attention. They stare at you completely, hoping to look interested so you will relax. I can not tell you how much worse this makes it. But I will give myself credit. I will not. Stop talking. I will finish my words. I will not sit down. I will brace myself on the table to keep my weak knees functioning. I will not sit down. Even though my body is betraying me.
Maybe this time it will be different. Maybe because someone will be standing up with me I will be ok. Maybe I’ll have a glass of wine and the liquid courage will wash over me and keep me steady. Maybe. But there are people coming that are going through the same things that we are going through with their own children. There are people that are so excited about this group starting and that can’t wait for the first meeting. I can just hope that will be enough to keep me focused and wash away my phobia. Because once my phobia is gone… I’m taking over the world, people.